Publications & Reports

Publications

GlobalSkin Atopic Eczema Community's Co-Published Article "The Patient Voice in Atopic Eczema Guidelines: How Do We Make it Standard Practice?" - The Patient - Patient-Centered Outcomes Research, November 2025
GlobalSkin's Co-Authored Editorial "Action is needed to implement World Health Assembly social participation resolution"- British Medical Journal, November 2025
GlobalSkin's Co-Authored Manuscript "Grand Challenges for Skin Health Revisited: The International League of Dermatological Societies (ILDS) Skin Disease Atlases" - British Journal of Dermatology, September 2025
GlobalSkin's Co-Published Article "Mental Health and Well‐Being Support for Individuals Living With Skin Conditions: A Global Landscape Analysis of Patient Needs and Current Resources" - JEADV Clinical Practice, June 2025
GlobalSkin's European Roundtable "Addressing Under-Prioritized Skin Diseases: Policy Responses to High-Burden Conditions” co-hosted with the ESDR - Journal of Investigative Dermatology, July 2024
GRIDD Project Article "Measurement Properties and Interpretability of the Patient-Reported Impact of Dermatological Diseases (PRIDD) Measure" - British Journal of Dermatology, June 2024
Patient prioritisation of items to develop the Patient-Reported Impact of Dermatological Diseases measure: A global Delphi study - JEADV, February 2024
Further refinement of the Patient-Reported Impact of Dermatological Diseases (PRIDD) measure using classical test theory and item response theory - British Journal of Dermatology, December 2023
Patient prioritisation of impact items to develop the patient-reported impact of dermatological diseases (PRIDD) measure: European Delphi data - JEADV, October 2023
The IRDiRC Chrysalis Task Force: making rare disease research attractive to companies - Therapeutic Advances in Rare Disease (TAIRD), July 2023
Development of a Conceptual Framework for a Patient-Reported Impact of Dermatological Diseases (PRIDD) Measure: A Qualitative Concept Elicitation Study - ActaDV, November 2022
Defining patient-centered research priorities in pediatric dermatology - Pediatric Dermatology, November 2022

Plain Language Research Summaries

GlobalSkin recognizes the importance of plain language summaries of research being conducted in dermatology. These plain language summaries benefit our Member organizations and dermatology patient advocates globally. Learn more via the links below.

British Journal of Dermatology - searchable listing of hundreds of plain language research summaries

The Journal of the European Academy of Dermatology and Venereology - publishes 4 plain-language research summaries in their monthly magazine in the Editor's Pick section.

Year in Review Reports

GlobalSkin produces a Year in Review report each calendar year which outlines our accomplishments, successes and how we as an organization are working towards changing the way the world sees dermatology.

Community Reports

Learn about the strategies that drvie our GlobalSkin Patient Organization Communities along with outcomes from recent events and awareness campaigns.

World Atopic Eczema Day 2025 Report, December 2025
RareDERM Forum Report, April 2025
World Atopic Eczema Day 2024 Report, November 2024
World Atopic Eczema Day 2023 Report, November 2023
World Atopic Eczema Day 2022 Report, November 2022
World Atopic Eczema Day 2021 Report, November 2021
World Atopic Ezcema Day 2020 Report, December 2020
RareDERM Community Three-Year Strategy, January 2020
Atopic Eczema Community Three-Year Strategy, January 2020
World Atopic Eczema Day 2019 Report, October 2019
RareDERM Forum Outcomes Report, August 2019
Atopic Eczema Outcomes Report, August 2019

GlobalSkin Position Papers

Policy Drivers in Atopic Eczema: Patient Leader Dialogue Report, November 2018
Economist Intelligence Unit: A misunderstood skin disease: Mapping the policy response to atopic dermatitis (co-sponsored with Pfizer), October 2018
Atopic Dermatitis: A Collective Global Voice for Improving Care, February 2018
Empowering and Advocating for Dermatology Patients, January 2018
Supporting Patients in the Digital Age, January 2018